Since 1992, the medical records of all patients seen at BWH for potential SLE have ben reviewed and > 2400 cases of SLE have been validated according to the American College of Rheumatology Criteria for the Classification of SLE. These data are continually updated and have been employed for multiple clinical research studies.
The BWH Lupus Biobank, established in 2008, has enrolled > 300 subjects and samples of DNA, RNA, whole blood and serum are banked at Broad Institute of Harvard and MIT. Data on demographics, family history (of autoimmune disease) past medical history, medications, SLEDAI disease activity and SLICC-DI organ damage scores are also collected. In addition to the BWH Lupus Center large patient population, there are a wealth of research and clinical SLE collaborators at BWH, an advanced electronic medical record system, and strong history of clinical and translational research in SLE. Click here to learn more.