Address:
Neurofibromatosis Clinics Association, Inc.
P.O. Box 14185
Pittsburgh, PA 15239
Phone:
(412) 795-3029
Fax:
(412) 795-3098
E-mail:
nfca@trfn.clpgh.org
(The NF Clinics Association is a local organization not affiliated with national organizations related to neurofibromatosis.)
Other Sites to Visit:
The National Neurofibromatosis Foundation, Inc.
Neurofibromatosis, Inc
Living with NF
NF Bulletin Boards and Chat Rooms
AirLifeLine
AirLifeLine is a national non-profit charitable organization of over 1,500 private pilots who fly ambulatory patients who cannot afford the cost of travel to medical facilities for diagnosis and treatment.
Angel Flight East
Angel Flight East is an organization of pilots and other volunteers dedicated to serving the community by providing FREE air transportation on private aircraft to financially and medically needy people who cannot access or afford regular commercial transportation to health care.
Children with Movement and Physical Challenges
Educational website for children and parents...
The American Pain Foundation
Source of information and patient support persons suffering with chronic pain...
NF Clinics
Neurofibromatosis Clinic at M. D. Anderson Cancer Center
Multidisciplinary, integrated approach to patient care, research, and education for children, adolescents, and young adults (up to 26 years old) with Neurofibromatosis (NF).
Neurofibromatosis Clinics Association, Inc.
Information on clinics and patients services in Pennsylvania...
Genetics
University of Utah & the National NF Foundation Collaboration: Interactive Educational Resource to Learn About the Genetics of NF1
The NNFF has partnered with the Genetics Science Learning Center (GSLC) at the University of Utah to create a genetics education website that features NF1 as a teaching module.
American Society of Human Genetics
Portal to different sites related to genetics, information about the work of the Society...
Alliance of Genetic Support Groups
International coalition that provides information, education and support to persons affected by genetic disorders...
Gene Clinics
Information on genetic testing, genetic counseling services and management of various genetic disorders...
Hereditary Disease Foundation
Non-profit organization that supports biomedical research...
Neurology
The National Institute of Neurological Disorders and Stroke (NINDS)
The nation's leading supporter of biomedical research on disorders of the brain and nervous system
Resources Related to Neuro-oncology
Information on brain and spinal cord tumors in children
Dept. of Neurology - The Neurofibromatosis Program. Comprehensive clinical and laboratory services for patients and their families with NF
NF clinical program at the St. Louis Children’s Hospital
Academic Press Book Catalog
Books related to neuroscience
General Health
Worldcare.com
Organization dedicated to providing quality U.S. medical care to patients and doctors residing outside the U.S.
The Virtual Hospital
Online medical library
AMA Physician Select
Nationwide physician locator service
EntreMed Home Page
Company dedicated to developing and commercializing angiogenic therapies to potentially treat cancer and blindness
National Organization for Rare Disorders (NORD)
Provides information and patient support for persons with rare disorders
Health Touch
Listing of on-line health resources, search database
Community Health Charities
RxList -- The Internet Drug Index
Pharmaceutical database
World Health Organization
U.S. Pharmacopeia
USP sets quality standards for manufactures of pharmaceutical and herbal supplements
MedExplorer
Offers a wide variety of health-related information from nutrition to vision care
Deaf/Hard of Hearing
Acoustic Neuroma Association
Patient support and information related to this condition
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